Patient resources
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Your Preemie’s Growth: Developmental Milestones
Category:: newborns_infants_and_toddlers
Information from the American Academy of Pediatrics about developmental milestones for your preterm baby (also known as preemie).
Students With Chronic Health Conditions: Guidance for Families, Schools, and Students
Category:: school-aged_children
School is more than a place to gain knowledge and skills. It also is a place where children meet new friends and learn about themselves and other important life lessons. Because children spend many hours in school, it is important that it be a safe and supportive environment for all children.
Managing Chronic Health Needs in Child Care and Schools—Vesicostomy
Category:: chronic_health_needs
A vesicostomy is a surgical opening in the bladder to the outside of the body (lower belly) that allows urine to come out, preventing urinary tract infection and damage to the kidneys. Urine drains constantly from this opening. The child will need to wear a diaper, training pants (Pull-Ups), or an incontinence
Managing Chronic Health Needs in Child Care and Schools—Traumatic Brain Injury (TBI) (Includes Concussion)
Category:: chronic_health_needs
Traumatic brain injury (TBI) is caused by a direct blow to the head with different amounts of force that cause mild, moderate, or severe brain injury. Mild TBI can be called a concussion.
Managing Chronic Health Needs in Child Care and Schools—Turner Syndrome
Category:: chronic_health_needs
Turner syndrome is a genetic condition that only affects girls and women. It occurs when 1 of the 2 X chromosomes normally found in females is missing or incomplete.
Managing Chronic Health Needs in Child Care and Schools—Tracheostomy
Category:: chronic_health_needs
The Care Plan should address
Managing Chronic Health Needs in Child Care and Schools—Spleen Problems
Category:: chronic_health_needs
Because the spleen can be affected differently by different diseases, it is difficult to say how many children have spleen problems.
Managing Chronic Health Needs in Child Care and Schools—Special Diets and Inborn Errors of Metabolism
Category:: chronic_health_needs
Some of the more common inborn errors of metabolism include
Managing Chronic Health Needs in Child Care and Schools—Spina Bifida
Category:: chronic_health_needs
Spina bifida means cleft spine, which is an incomplete closure in the spinal column. The 4 types of spina bifida are
Managing Chronic Health Needs in Child Care and Schools—Sickle Cell Disease
Category:: chronic_health_needs
Children with sickle cell disease should have at least 8 cups of water or fluid per day.
Managing Chronic Health Needs in Child Care and Schools—Short-Stature Conditions
Category:: chronic_health_needs
More than 100 specific conditions have been identified that can cause short stature. Achondroplasia occurs in people of all races and with equal frequency in males and females, and it affects about 1 in every 26,000 children. An estimated 10,000 individuals in the United States have achondroplasia.
Managing Chronic Health Needs in Child Care and Schools—Seizures, Nonfebrile (Epilepsy)
Category:: chronic_health_needs
Seizures represent the most common neurologic disorder in children. About 1% of all children have a type of non-febrile seizure disorder, or epilepsy.
Managing Chronic Health Needs in Child Care and Schools—Preterm Newborns (Preemies): An Overview
Category:: newborns_infants_and_toddlers
One in 10 babies (9.6%) was born prematurely in the United States in 2016.
Managing Chronic Health Needs in Child Care and Schools—Seizures, Febrile
Category:: chronic_health_needs
Febrile seizures are described as generalized (whole brain and body involved), tonic-clonic (shaking) movements of a child’s body in response to a high fever. These seizures represent abnormal brain electrical activity triggered by fever.
Managing Chronic Health Needs in Child Care and Schools—Prader-Willi Syndrome (PWS)
Category:: chronic_health_needs
Prader-Willi syndrome (PWS) is a genetic condition that affects the brain and causes newborns and young infants to be weak and slow to gain weight but shifts to causing excessive hunger and weight gain in toddlers. It affects boys and girls equally.
