Patient resources

Gastrostomy tubes are placed in children for many reasons, including prematurity, feeding problems, and brain disorders, and they have become more prevalent as lifesaving medical treatments for children have improved.

Fragile X syndrome is an inherited form of intellectual disability that is primarily seen in males. It is the most common form of inherited intellectual disability. Fragile X syndrome is caused by the FMR1 gene on the X chromosome.

Allergy is the term used to describe the body’s overreaction to something that it views as foreign or different from itself. The body reacts by releasing histamine and other substances that cause allergic symptoms.

Fetal alcohol spectrum disorder (FASD) is the general term used to describe the range of adverse fetal effects associated with prenatal alcohol exposure.

Eczema (atopic dermatitis) is a long-lasting skin condition that causes the skin to be overly sensitive to many things.

Ehlers-Danlos syndrome (EDS) is a collection of inherited conditions that cause the tissues that connect parts of the body (connective tissue) to be loose. This can cause loose joints, stretchy skin, and delayed healing of the skin. This collection of conditions was reclassified in 2017, so it is important

Down syndrome is a relatively common birth defect caused by extra genetic material from chromosome 21 (ie, there are 3 copies of chromosome 21 rather than 2). This syndrome affects the physical and intellectual development of the child.

Physical activity is important to the health of children with type 2 diabetes, so outdoor play is part of their therapy. Children with type 1 diabetes should be able to play normally. Staff should take a portable pack with insulin, syringes, high-calorie supplements, and glucagon in case of emergency

There are currently about 30,000 children and young adults with CF in the United States.

Children have developmental delay when they do not attain the skills that typically developing children acquire at a certain age. Child development is a process that involves learning and mastering skills such as sitting, rolling over, walking, understanding, and talking. Typically developing children

Develop strategies for accommodating children with cleft lip or cleft palate. Suggestions include

Cerebral palsy (CP) is a condition caused by brain injury that interferes with messages from the brain to the body; this interference affects movements and muscle coordination.

Childhood obesity is a serious medical condition that affects children and adolescents. It occurs when a child is well above the normal weight for the child’s age and height.

The treatment team includes a pediatric gastroenterologist and registered dietitians or nutritionists.

Children may come to school or a child care center while they are receiving active treatment of cancer, or they may be diagnosed as having cancer while enrolled.